A National Dementia Registry for Ireland: A feasibility study
This report, commissioned under The Alzheimer Society of Ireland's expert policy series, provides much needed information on the feasibility of developing a dementia registry within the Irish context.
The authors proactively engaged with leading experts both in the field of dementia and in patient’s registries more generally.
They also, very importantly, met and engaged with people living with dementia; those whose information would be collected, stored and used in any future registry.
These expert opinions, combined with a review of national patient registries and a review of international dementia registries, identifies good practice as well as potential pitfalls in establishing and running such a registry.
Full report and report summary attached.